SYDNEY has rallied around forward Gary Rohan and wife Amie after the couple's twin girls were born on Thursday.

Bella Rae and Willow Nevaeh were born on Thursday morning, but Willow, who had been already diagnosed with anencephaly – a fatal condition that prevents the formation of a baby's brain and skull – tragically passed away hours after being born.

The Swans released a statement on Friday, saying: "Willow had five special hours with her mum and dad before 'growing her angel wings'. Amie and Bella are now resting in hospital."

Rohan missed the trip to Perth to face West Coast in the season opener to stay in Sydney with Amie and was left out of the Swans' team for Saturday's round four clash with the Western Bulldogs for the same reason.

The Swans have placed no time frame on Rohan's return to the club and will focus all their attention on providing the popular clubman with all the support his family needs.

The 26-year-old wrote on social media in November that talking about the situation had been therapeutic for the expectant parents.

"We would love for anyone who has been affected by anencephaly themselves or know of others affected by anencephaly to please contact us," he wrote on Instagram.

"Don't be afraid to talk to us about it. That's what we want, we want people to ask questions, we want to talk about it with others.

"We still need questions answered as much as everyone else. 

"And at the end of the day, we will always be parents to twins, our journey has just been written a little differently to others."

If you or someone you know is looking for support, visit: anencephaly.info

Our beautiful baby girls have arrived Thursday the 12th of April 2018 Bella Rae Rohan 1780g / 3 pound 9 43cm 8:59am Willow Nevaeh Rohan 1295g / 2 pound 8 41cm 9:00am The most perfect little souls we have ever laid eyes on, we feel so truly blessed to be your parents xxx Amie, Bella and I soaked up every second we had with Willow, making as many lasting memories as we could all together. Its those little moments we know we will never get back, and we will forever cherish the time we spent as our little family of four, before our darling Willow grew her little angel wings Bella is currently getting some special care in the NICU nursery but all in all doing very well. We can’t thank our team at the Royal Woman’s enough, yesterday was one off the hardest days Amie and I have ever had to deal with. It was a day full of many mixed emotions and you, our team, made everything so perfect. Words truly can’t express how grateful we are. To absolutely everyone else, thank you so very much for your kind words and support during this sad, happy, joyful and exciting time in our lives we are very proud parents off two beautiful little girls who we love so very much xxx Our little angel Willow, oh how much you taught us in your precious 5 hours here ‘A life so brief, a child so small, you had the power to touch us all’

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